Finding My Voice

November 4, 2019November 17, 2019 ~ Megan

Photo of the 400+ Rare Disease Legislative Advocates. Photo courtesy of EveryLife Foundation. I don't know why it's so hard to believe I'm allowed to have a voice. Actually, believing I have a voice isn't the problem. Its believing I have a voice worth listening to...that's where I struggle. Believing that my experience has value … Continue reading Finding My Voice

Hello, World!

Road winding through fall forest. The leaves of the trees are green, orange, red, and yellow.

November 2, 2019November 17, 2019 ~ Megan

Hello, World! Once upon a time, I had a blog. It was so fun for me, but after a rough year, I stopped and didn’t pick it up again. Then I got sick. Again. My plate suddenly got really full trying to manage a serious, life-altering disease. It was really easy to narrow my world … Continue reading Hello, World!