It's amazing how quickly the world turned upside down. I live in Utah and two weeks ago I went into isolation. Turns out my main hobbies are shopping and having the freedom to go wherever I want. Ha. Fortunately, I can work from home for the foreseeable future, which has been nice. But I miss … Continue reading A World Turned Upside Down
Today (Leap Day!) is Rare Disease Day so I thought I’d share my experiences having a Primary Immunodeficiency and being on immunoglobulin therapy. Two years ago I started weekly immunoglobulin therapy. It’s been quite the journey.
In 2019 I thought I’d keep track of the cost of chronic illness, or at least mine, for a year. Keep in mind this year I was pretty stable AND I’ve gone a whole year without an ER visit and anaphylaxis. Winning!! The last time I went a whole year without an ER visit was … Continue reading The Cost of Chronic Illness
Looking for gift suggestions for a friend or family member with a Mast Cell disease (your "Mastie")? Giving and receiving gifts for a Mast Cell patient can be tricky due to everyone’s very individual trigger list. I thought I would try to put together a list of suggestions if you are looking to give a gift … Continue reading Mast Cell Disease Friendly Gift Suggestions
Let's make one thing clear out of the gate: I hate wearing this stupid mask. But because I have a fragrance allergy and sensitivity, and my lungs are so sensitive to air quality--I wear it. The mask helps filter out them out. I currently have a Cambridge mask and it supposed to help filter out … Continue reading The Mask: Life with Fragrance Allergy and Sensitivity
