Life on the Edge

5 years ago

I live life on the edge. The edge of an allergic reaction. The edge of medical science. The edge of…

Finding My Voice

5 years ago

Photo of the 400+ Rare Disease Legislative Advocates. Photo courtesy of EveryLife Foundation. I don't know why it's so hard…

Hello, World!

5 years ago

Hello, World! Once upon a time, I had a blog. It was so fun for me, but after a rough…

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